Monday, January 21, 2013

The results are in!

I feel really bad because I was the total pushy mom who called the pediatrician's office 3 times today hoping to hear the results of this head ultrasound.  I blame the tech who freaked me out!  When I called for the 3rd time at 3:45pm, I decided I would hit "2" to make an appointment so I could talk to a live person instead of leaving a message for the nurse (one of the many little tricks I've learned).  The receptionist looked into it and told me that they were waiting on the past images from CHOC and then they could compare the images and give me the results.  I asked if she thought I'd get the call back tonight, and she said she wasn't sure, but they were open until 6:30pm, so there was still a chance.  When 6:30 rolled around, I really thought I was going to have to come up with some really good breathing exercises to help me make it through until tomorrow when my phone rang!! 

It was the nurse from the pediatrician's office with the report on the ultrasound.  They had looked at all the previous scans, and she said that things look the same, which is good and bad, but mostly good.  It's not great that he has hydrocephalus, but it is great that it's still mild.  She gave us the name of a neurosurgeon who will begin to follow Ryan.  Hopefully he'll just be able to give us more information and it will be nice to have all of his records in one place so we don't have to go through this waiting again! 

Thank you all for the extra thoughts and prayers.  I know they definitely helped!  So Ryan will have one more specialist to see, hopefully he'll outgrow this one as quickly as he outgrew his cardiologist.  I'm not sure how it works, but from my understanding, mild hydrocephalus is not caused by too much pressure in the brain, but just by excess fluid, which can be caused by slower brain development, which could be caused by the lack of a few of his senses.   We'll just keep on top of it, and keep stimulating him with the senses he can use for now so that he will continue to grow.  On the bright side, from what I could tell just being me (not a doctor) and remembering what I saw on the last head ultrasound in October, it definitely looked like his brain had more of those ripples that mean his brain is growing.  It will be nice to be able to meet with someone who can look at those images with me and explain exactly what I'm seeing!  Anyways, thanks again for the prayers.  Our strong little guy is still working on getting better each and every day!

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1 comment:

Nikki said...

you're such an awesome momma! keeping ryan in our prayers! xo